RT Journal Article
SR Electronic
T1 EP209/#654  NuGenA (Nurse-led genetic counselling and awareness): a provider survey on barriers of implementation in LMICS
JF International Journal of Gynecologic Cancer
JO Int J Gynecol Cancer
FD BMJ Publishing Group Ltd
SP A163
OP A164
DO 10.1136/ijgc-2023-IGCS.291
VO 33
IS Suppl 4
A1 Chakraborty, Dona
A1 Mukhopadhyay, Asima
A1 Singhal, Seema
A1 Singh, Nisha
A1 Pariyar, Jitendra
A1 Singh, Priyanka
A1 Gupta, Bindiya
A1 Shrestha, Rajani
A1 Group, Kolgotrg
YR 2023
UL http://ijgc.bmj.com/content/33/Suppl_4/A163.abstract
AB Introduction Availability and affordability of genetic testing and counselling for gynaecological malignancies remain an unmet clinical need in LMICs. Through KolGoTrg, we started an implementation research project NuGenA to overcome these barriers by training nurses to improve genetic testing uptake and identifying at-risk family members(www.kolgotrg.org/nugena/).Training workshops were held for nurses in India and Nepal. We aimed to explore knowledge attitude practice (KAP) and perceived barriers from the provider end in implementing nurse-led hereditary cancer clinics using an EASE model(table 1). Methods Gyn Oncology leads interested in setting up genetic clinics in India and Nepal were invited to send nurses for 3-day structured training workshops. The lead nurse, trained in genetic counselling (Co-PI) was the key educator. Pre-and post-training assessment of KAP was done and a survey (27 items) was sent out one month after the workshop to assess success/challenges faced in implementing nurse-led service/family history clinics. Results 30 nurses participated: 11 from 5 centres in India and 19 from10 centres in Nepal. Significant improvement occurred in post-workshop level of KAP. 11(39%) nurses commenced a service by setting up clinics (6 centres)/starting counselling patients. > 90% expressed interest in further courses, workshops and setting up clinics. Barriers identified included: institutes not interested,lack of awareness amongst doctors (59% respondents), patient overburdening in clinics/lack of clinic time, requirement for administrative approval, staff crisis, cost of genetic tests, lack of local dedicated labsConclusion/Implications Continued effort is required for provider training and awareness for scalability of nurse-led genetic counselling services including inclusion in Gyn Oncology nursing curriculums.View this table:Abstract EP209/#654 Table 1 Abstract EP209/#654 Figure 1