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EV213/#1163  Exploring the experiences of informal primary caregivers of women with advanced or terminal gynaecological cancer in a low resource setting during the covid-19 pandemic
  1. Hannah Simonds,
  2. Chante Odendaal,
  3. Warona Mateane and
  4. Rizwana Roomaney
  1. Stellenbosch University, Cape Town, South Africa

Abstract

Introduction Gynaecological cancer patients rely on informal primary caregivers, typically family members, to provide care and support. This can place a heavy burden on caregivers, especially when patients have advanced or terminal cancer. The COVID-19 pandemic affected healthcare systems across the world, which may have added to the responsibilities and strain of caregivers. However, literature exploring the experiences of informal caregivers of advanced or terminal gynaecological cancer patients during the COVID-19 pandemic is limited within the South African context. To address this gap within the literature, we explored the experiences of informal primary caregivers of women with advanced or terminal gynaecological cancer. This description provides insight into the experiences of caregivers during a challenging period in their lives.

Methods We conducted an exploratory, qualitative study with 16 informal primary caregivers. The caregivers participated in individual, semi-structured interviews. The interviews were audio-recorded, transcribed, and analysed using reflexive thematic analysis.

Results We identified three themes namely, (1) Limited hospital access to caregivers, (2) Hypervigilance of caregivers, and (3) An opportunity to bond. The findings highlight the extent to which informal caregivers protected and prioritised the well-being of patients during their illness trajectory. Participants experienced a communication gap with healthcare professionals, making it more challenging for them to administer care to patients at home.

Conclusion/Implications This study highlighted the positive and challenging aspects of providing care for patients with advanced or terminal cancer during the COVID-19 pandemic. Caregivers prioritised the needs of the patient and created safety bubbles to shield the patient from COVID-19. T

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