Article Text

Download PDFPDF

EP209/#654  NuGenA (Nurse-led genetic counselling and awareness): a provider survey on barriers of implementation in LMICS
Free
  1. Dona Chakraborty1,2,
  2. Asima Mukhopadhyay1,3,4,
  3. Seema Singhal5,
  4. Nisha Singh6,
  5. Jitendra Pariyar7,
  6. Priyanka Singh8,
  7. Bindiya Gupta5,
  8. Rajani Shrestha7 and
  9. Kolgotrg Group1
  1. 1KolGoTrg, Gynecologic Oncology, Kolkata, India
  2. 2Kolkata Gynecological Oncology Trials and Translational Research Group, Gynecologic Oncology, Kolkata, India
  3. 3Kolkata Gynecological Oncology Trials and Translational Research Group, Gynecological Oncology, Kolkata, India
  4. 4James Cook University Hospital, Gynaecological Oncology, Middlesborough, UK
  5. 5AIIMS, New Delhi, Gynecologic Oncology, New delhi, India
  6. 6King George’s Medical University, Obstetrics and Gynecology, Lucknow, India
  7. 7Civil Service Hospital of Nepal, Gynecologic Oncology, kathmandu, Nepal
  8. 8Kalyan Singh super speciality Cancer Institute, Lucknow, Uttar Pradesh, India

Abstract

Introduction Availability and affordability of genetic testing and counselling for gynaecological malignancies remain an unmet clinical need in LMICs. Through KolGoTrg, we started an implementation research project NuGenA to overcome these barriers by training nurses to improve genetic testing uptake and identifying at-risk family members(www.kolgotrg.org/nugena/).Training workshops were held for nurses in India and Nepal. We aimed to explore knowledge attitude practice (KAP) and perceived barriers from the provider end in implementing nurse-led hereditary cancer clinics using an EASE model(table 1).

Methods Gyn Oncology leads interested in setting up genetic clinics in India and Nepal were invited to send nurses for 3-day structured training workshops. The lead nurse, trained in genetic counselling (Co-PI) was the key educator. Pre-and post-training assessment of KAP was done and a survey (27 items) was sent out one month after the workshop to assess success/challenges faced in implementing nurse-led service/family history clinics.

Results 30 nurses participated: 11 from 5 centres in India and 19 from10 centres in Nepal. Significant improvement occurred in post-workshop level of KAP. 11(39%) nurses commenced a service by setting up clinics (6 centres)/starting counselling patients. > 90% expressed interest in further courses, workshops and setting up clinics. Barriers identified included: institutes not interested,lack of awareness amongst doctors (59% respondents), patient overburdening in clinics/lack of clinic time, requirement for administrative approval, staff crisis, cost of genetic tests, lack of local dedicated labs

Conclusion/Implications Continued effort is required for provider training and awareness for scalability of nurse-led genetic counselling services including inclusion in Gyn Oncology nursing curriculums.

Abstract EP209/#654 Table 1

Statistics from Altmetric.com

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.