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#185 Current conversations and trends in vulvar cancer on instagram: a study by the european network of young gynaecologic oncologists (ENYGO)
  1. Sara Nasser1,
  2. Wasim Ahmed2,
  3. Esra Bilir3,4,5,
  4. Fabio Martinelli6,
  5. Raffaella Ergasti7,
  6. Joanna Kacperczyk-Bartnik8,
  7. Nicolò Bizzarri7,
  8. Martina Aida Angeles9,
  9. Aleksandra Natalia Strojna10,
  10. Zoia Razumova11,
  11. Charalampos Theofanakis12,
  12. Gilberto Morgan13,14 and
  13. Ane Gerda Eriksson15
  1. 1Department of Gynecology and Tumor Surgery, Charite Comprehensive Cancer Center, Berlin, Germany
  2. 2Stirling University Management School, Stirling, UK
  3. 3Department of Obstetrics and Gynaecology, Die Klinik in Preetz, Preetz, Germany
  4. 4Department of Gynecologic Oncology, Koc University School of Medicine, Istanbul, Turkey
  5. 5Department of Global Health, Koc University Graduate School of Health Sciences, Istanbul, Turkey
  6. 6Department of Gynecologic Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy
  7. 7UOC Ginecologia Oncologica, Dipartimento per la salute della Donna e del Bambino e della Salute Pubblica, Policlinico Agostino Gemelli IRCCS, Rome, Italy
  8. 8II Department of Obstetrics and Gynaecology, Medical University of Warsaw, Warsaw, Poland
  9. 9Gynecologic Oncology Unit, Vall d’Hebron Barcelona Hospital Campus, Barcelona, Spain
  10. 10Department of Gynecology and Gynecologic Oncology, Evangelische Kliniken Essen Mitte, Essen, Germany
  11. 11Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden
  12. 12Division of Gynaecological Oncology, 1st Department of Obstetrics and Gynaecology, Alexandra Hospital, National and Kapodistrian University of Athens, Athens, Greece
  13. 13Department of Medical Oncology, Skåne University Hospital, Lund, Sweden
  14. 14OncoAlert Network, Lund, Sweden
  15. 15Department of Gynecologic Oncology, Division of Cancer Medicine, Oslo University Hospital, Norwegian Radium Hospital, Oslo, Norway


Introduction/Background The use of social media to raise awareness of gynaecological cancer is increasingly more common. Moreover, women use social media channels to share their stories and experiences of diagnosis, treatment, and survival. Influencers are using platforms such as Instagram for inspiration, motivation, and education. However, the literature on the use and engagement on Instagram to raise awareness for gynaecological cancers, particularly, vulval cancer is still lacking. In this descriptive analysis, we aim to identify the volume and themes of posts on Instagram relating to vulval cancer.

Methodology We identified the volume of posts related to specific hashtags by using the Instagram search feature. We analysed results from the following hashtags from October 2010 to May 5th, 2023: #vulvarcancer, #vulvalcancer, #vulvarcancerawareness, and #vulvalcancerawareness. The top two posts were then classified and analysed by theme using the Instagram algorithm. If posts received comments, a word cloud was generated to identify the most commonly used words.

Results We identified a total of 20756 posts relating to the above-mentioned hashtags. The top two posts received 11 and 23 likes, respectively, and a total of 3 comments. The central theme of the posts was sharing the patient‘s journey through treatment and general education on vulval cancer. There were not enough posts to generate a word cloud.

Abstract #185 Table 1

Classification of the Top Two Instagram Posts for #vulvarcancer, #vulvalcancer, #vulvalcancerawareness and #vulvarcancerawareness:

Conclusion Considering that Instagram has over one billion active users per month, the number of posts and the interaction and content are disappointingly low. In an era of digitalisation, powerful platforms such as Instagram provide enormous potential and a vast outreach to raise awareness and build communities for women with vulval cancer. Although there is a growing trend to use Instagram for this purpose, this should form an integral part in the patient‘s journey.

Disclosures None

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