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#182 Investigating current trends and conversations on ovarian cancer on instagram: a study by the European network of young gynaecologic oncologists (ENYGO)
  1. Esra Bilir1,2,3,
  2. Wasim Ahmed4,
  3. Martina Aida Angeles5,
  4. Raffaella Ergasti6,
  5. Fabio Martinelli7,
  6. Nicolò Bizzarri6,
  7. Joanna Kacperczyk-Bartnik8,
  8. Sara Nasser9,
  9. Aleksandra Strojna Natalia10,
  10. Charalampos Theofanakis11,
  11. Zoia Razumova12,
  12. Gilberto Morgan13,14 and
  13. Ane Gerda Eriksson15
  1. 1Department of Obstetrics and Gynecology, Die Klinik in Preetz, Preetz, Germany
  2. 2Department of Global Health, Koç University Graduate School of Health Sciences, Istanbul, Turkey
  3. 3Department of Gynecologic Oncology, Koç University School of Medicine, Istanbul, Turkey
  4. 4Stirling University Management School, Stirling, UK
  5. 5Gynecologic Oncology Unit, Vall d’Hebron Barcelona Hospital Campus, Barcelona, Spain
  6. 6UOC Ginecologia Oncologica, Dipartimento per la salute della Donna e del Bambino e della Salute Pubblica, Policlinico Agostino Gemelli IRCCS, Rome, Italy
  7. 7Department of Gynecologic Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy
  8. 8II Department of Obstetrics and Gynaecology, Medical University of Warsaw, Warsaw, Poland
  9. 9Department of Gynecology and Tumor Surgery, Charite Comprehensive Cancer Center, Berlin, Germany
  10. 10Department of Gynecology and Gynecologic Oncology, Evangelische Kliniken Essen Mitte, Essen, Germany
  11. 11Division of Gynaecological Oncology, 1st Department of Obstetrics and Gynaecology, Alexandra Hospital, National and Kapodistrian University of Athens, Athens, Greece
  12. 12Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden
  13. 13Department of Medical Oncology, Skåne University Hospital, Lund, Sweden
  14. 14OncoAlert Network, OncoAlert Network, Sweden
  15. 15Department of Gynecologic Oncology, Division of Cancer Medicine, Oslo University Hospital, Norwegian Radium Hospital, Oslo, Norway


Introduction/Background Social media is an increasingly powerful tool to raise awareness of gynaecological cancers and share scientific output in the field of gynaecologic oncology. Recent studies on Twitter revealed its impact on raising awareness regarding gynaecological cancers and dissemination of scientific knowledge. Through the use of images, powerful patient stories, and varied infographics, charities and the wider public and patients are raising awareness and support for gynaecological cancers on Instagram. However, the literature on the role of Instagram in gynaecological cancers is lacking. We aim to investigate the volume and content of posts regarding ovarian cancer (OC) on Instagram.

Methodology We retrieved the results on #ovariancancer Instagram query between October 2010 and May 5, 2023. The study made use of Instagram’s search feature to identify posts related to the aforementioned hashtag and this was recorded. Instagram algorithm determines and shows a number of ‘top’ posts. Our study examined the top five posts related to the hashtag in question. These were thematically analysed to identify content of the post.

Results Our query resulted in 375,072 posts. Among the top five posts during the study period, the likes ranged from 2838 to 48. Figure 1 is based on the top Instagram post, which included 26 comments. Moreover, the number of comments among the top five posts ranged from 4 to 202. The descriptions of top posts were awareness, patient education by a patient with OC, a patient sharing her struggles, OC treatment of side effects, and promotion of OC research with a patient story, respectively. It is a word cloud of comments; it shows positivity, love, praying, and hope within the comments section.

Conclusion Instagram is a platform mainly used by patients and advocates to raise awareness regarding OC. There is a potential for medical professionals and societies to increase presence on Instagram.

Abstract #182 Figure 1

The word cloud of the top #OvarianCancer post

Disclosures None

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