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#183 Exploring endometrial cancer conversations on instagram: insights from a study by the european network of young gynaecologic oncologists (ENYGO)
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  1. Raffaella Ergasti1,
  2. Wasim Ahmed2,
  3. Esra Bilir3,4,5,
  4. Fabio Martinelli6,
  5. Aleksandra Natalia Strojna7,
  6. Joanna Kacperczyk-Bartnik8,
  7. Sara Nasser9,
  8. Nicolò Bizzarri1,
  9. Martina Aida Angeles10,
  10. Zoia Razumova11,
  11. Charalampos Theofanakis12,
  12. Gilberto Morgan13,14 and
  13. Ane Gerda Eriksson15
  1. 1UOC Ginecologia Oncologica, Dipartimento per la salute della Donna e del Bambino e della Salute Pubblica, Policlinico Agostino Gemelli IRCCS, Rome, Italy
  2. 2Stirling University Management School, Stirling, UK
  3. 3Department of Gynecologic Oncology, Koc University School of Medicine, Istanbul, Turkey
  4. 4Department of Global Health, Koc University Graduate School of Health Sciences, Istanbul, Turkey
  5. 5Department of Obstetrics and Gynaecology, Die Klinik in Preetz, Preetz, Germany
  6. 6Department of Gynecologic Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy
  7. 7Department of Gynecology and Gynecologic Oncology, Evangelische Kliniken Essen Mitte, Essen, Germany
  8. 8II Department of Obstetrics and Gynaecology, Medical University of Warsaw, Warsaw, Poland
  9. 9Department of Gynecology and Tumor Surgery, Charite Comprehensive Cancer Center, Berlin, Germany
  10. 10Gynecologic Oncology Unit, Vall d’Hebron Barcelona Hospital Campus, Barcelona, Spain
  11. 11Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden
  12. 12Division of Gynaecological Oncology, 1st Department of Obstetrics and Gynaecology, Alexandra Hospital, National and Kapodistrian University of Athens, Athens, Greece
  13. 13Department of Medical Oncology, Skåne University Hospital, Lund, Sweden
  14. 14OncoAlert Network, Lund, Sweden
  15. 15Department of Gynecologic Oncology, Division of Cancer Medicine, Oslo University Hospital, Norwegian Radium Hospital, Oslo, Norway

Abstract

Introduction/Background Social media represents a strong instrument to share and divulge information targeting people of different ages and backgrounds. Little is known regarding how social media may impact patients’ understanding and acceptance of their disease, large-scale screening and health care improvement. Due to the rising incidence of endometrial cancer globally, we aimed to understand the extent of posts regarding this disease on Instagram, one of the most used social media platforms.

Methodology We collected and analysed the number of Instagram posts for the following hashtags: #uterinecancer, #endometrialcancer, and #wombcancer from the launch of Instagram (October 2010) to May 5th, 2023. Moreover, using the Instagram algorithm, we highlighted the two top posts for each used hashtag.

Results We identified 83.670 posts related to endometrial cancer. More specifically, 48.597 posts for #uterinecancer, 28.234 posts for #endometrialcancer and 6.839 posts for #wombcancer. The most rated post on endometrial cancer belonged to a scientific research alliance providing an informative description of the disease, whereas the second top post consisted of a cancer-related nutritional advices’ advertisement for patients. Figure 1 summarises the most frequent words gathered from the top post comments. It shows that endometrial cancer posts are usually linked to everyday life factors according to patients’ point of view: hormonal changes, stressful life, hormonal therapy, and childbearing.

Abstract #183 Figure 1

The word cloud of the top ranked post on endometrial cancer

Conclusion In conclusion, Instagram may be considered a crucial social media platform for patients with endometrial cancer to obtain information regarding their disease.

Disclosures None

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